A goal is a dream with a deadline. ― Napolean Hill
All our dreams can come true, if we have the courage to pursue them. ― Walt Disney
It took me a lot of time to decide to make my story public or not. Finally I decided to share my story with the hope that I can receive medical advice from people suffering of rosacea and also my medical experience till now can be useful to those that read this blog.
My story started in 1989. For eight years between 1989 and 1997 I had dermatological treatments for seborrheic acne. For years my skin was peeled of thousands of layers with solutions containing alcohol, salicilic acid, boric acid, sulf, glicerin, talc, etc. After the peeling I had to apply on my face a cream with Eritromicin, Sulf, Ac Boric, Ihtiol, Cutaden. After 8 years of pains and frustrations my face remained very sensitive, red, very sensitive to the sun and heat. Till 2010 I had no ideea that was happening to me was having a name: rosacea. For years I was not able to stay in the sun but I had no idea what was it.
In 2010 it was for the first time prescribed to me Advantan, Metroruboril and Ruboril, Biotics, but my diagnostic put by the doctor was seborrheic dermatithis. For me was very strange to be diagnosed with seborrheic dermatithis and prescribed products for rosacea. Both dieases are chronic but they are very different in manifestations.
The second treatment was with Roselian/Rubialin, Hydraphase UV, Triderm, Detralex and Triovit.
The third treatment was with Avene Anthirougeurs, Ivatherm for sensitive cuperozic skin and Zinc.
None of the treatments worked for me. After 3 days or more I had to abandon.
My last treatment was the first time when I was diagnosed with rosacea eritematosa. The treatment prescribed was: Mirvaso gel, Klacid, Nexium, Clonidina and Zinckit.
For a year and a half my face was red and burning with chemical sensations in the skin and pains. The burning sensation was lasting for hours from one hour to 4 or 5. The hope that Mirvaso gel will work for me was in vain. Mirvaos gel did not work for me. My face was like in the third picture posted on my blog when I was applying Mirvaos gel (https://romeomilea.wordpress.com/2015/08/08/romanian-with-burnt-and-burning-face-has-the-right-to-face-skin-transplant-refused-by-prof-dr-ioan-lascar/).
Klacid and Nexium did nothing to me as I done numeros tests for bacteria, fungi and worms and all seemed ok.
The combination between Clonidina and Zinckit succeded after a few months to stop the redness and the burning sensation.
Rosacea succeded to distroy my life. It affects me pysical(it is distroing my face), psyhical( I have to take anti-depresants), financial( I lost my job and I have not worked in the last 6 years) and social( left me with no friends and no family). Owing to rosacea I gave up to my career in Finance in the Caribbean and I am prisoner in the house.
Today my face is like melting with chemical and pysical sensations in the skin that I cannot bear. I still cannot stand in the sun and heat. Left with no treatment my medical condition is not improving. I have the permanent feeling that I have a wound on my face.
My face is clean. I dont have pustules or acne. From my experience vitamin A, D2+D3, B6 tend to agravatte my rosacea as they are reducing the quantity of sebum from the skin.
I lost my hope that the dermatologists will do something good to my skin. So I asked for a facial skin transplant but I was refused because they said the transplant would mutilate me and the problem is pure dermatological.
I dont know where to go and who to ask for help. I was not even succesful to secure a job in the house. Work from home jobs are for informaticians and not for an Economist like me.
I lost my faith and hope that something can be done for me.
Dear reader share your experience with me. I dont know that to take internally and what to apply externaly to have peace in the skin.
Originally posted on skintastic:
I know that there are lots of people that suffer from rosacea and after recently reading a blog about this skin condition I was particularly blown away by the personal journey that Julie has been sharing. I think you will all agree that Julie is a great inspiration to those suffering with this skin condition.
In today’s post you will hear Julie’s story and how she has been living with rosacea for the last 15 years. Now that she has finally managed to control this skin disorder, she has turned her writing talents to blogging on the subject in the hope of helping others who are struggling with the condition. Julie is also a Canadian child’s and young adult fiction author, known for such titles as Love at First Plight (book 1 of the Perspective series).
How Rosacea Changed My Life and Lifestyle
It sounds crazy to say that a…
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Rosacea not only affects the skin but the confidence of sufferers and from my own personal experience I know how debilitating its effects can be. – Cynthia Nixon
You make a living by what you get. You make a life by what you give. – Winston Leonard Spencer Churchill