With permission, I’m posting that comment here, as I found it hugely insightful and deserving of a wider audience.
From a medical perspective, both CFS and fibromyalgia are diagnoses of exclusion.
That is to say that you can only really diagnose them when you have considered and ruled out all other possible conditions that can be tested for and treated. When you have exhausted all possibilities, then you use a term like CFS or fibromyalgia.
To be honest, it’s just a label. As you quite rightly pointed out, many people labelled with CFS or fibromyalgia probably have completely different reasons for their symptoms. And unfortunately, the labels carry a stigma.
A lot of doctors will subconsciously put you down as a troublemaker…
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