Support Groups for People Suffering of Chronic Fatigue Syndrome and Fibromyalgia

Support Groups for People Suffering of Chronic Fatigue Syndrome and Fibromyalgia


People with FM and/or CFS/ME often feel alone with their disease and with the everyday struggles their medical condition brings to their lives. We all need to know we’re not alone in our pain and suffering. Often, the best medicine can be laughter shared between people like “us”, people with FM and/or CFS/ME.

The following groups meet online only. They offer help for people unable to leave home for an actual support group meeting. Many of these groups offer monthly newsletters, research, information, and forums for people with FM and/or CFS/ME. Groups can vary in size.

The groups below are listed in alphabetical order by group name.

 Group Name  Description
Action for ME Support for ME patients in the UK.
AFFTER – (Advocates for Fibromyalgia Funding, Treatment, Education and Research)
A Non-Profit, 501(c)(3) Organization that is on a mission to help those with FMS and related illnesses: We participate in awareness activities; coordinate educational events and offer the educational literature to patients and general community; support the patient population with on-line groups and resources; and organize charitable events to raise funds for fibromyalgia research and
CFIDS Assoc. of America Working to conquer Chronic Fatigue and Immune Dysfunction Syndrome.
CFS/FM Online Support, Referrals, & Resources
Pat Gurnick, CLC (Psychotherapist, Healer, Empath, recovered from CFS/FM) is located in Boulder, Colorado. She offers free online support, referrals and resources. You can also email her for guidance.
Chronic Fatigue Syndrome Support Group
A community of patients, family members and friends dedicated to dealing with Chronic Fatigue Syndrome, together.
Chronic Pain Conditions
This group has been created for those who suffer from RSD-Reflex Sympathetic Dystrophy, Chronic Pain conditions, Fibromyalgia etc.
Chronic Pain Support Group A community of patients, family members and friends dedicated to dealing with Chronic Pain, together.
CNY Fibromyalgia Support Group
Support and discussion monthly. For those that have Fibromyalgia, CFS or Lupus, all welcomed. This group is not always serious but a fun group with great tips.
Daily Strength – Support Community People sharing their advice, treatment experiences, and support.
EDSAUS – Ehlers-Danlos Syndrome in Australia We are the primary Australian support and awareness group for people with Ehlers-Danlos Syndrome and their loved ones. Many people who have EDS are also diagnosed with FM, CFS or both. All information on EDSAUS is public.
The Environmental Illness Resource The Environmental Illness Resource is an information resource and interactive community site for people suffering from a range of chronic multi-system illnesses (e.g. ME/CFS/Fibro) which are poorly understood and for which there is currently very limited healthcare available.
 Fibromyalgia Support Group
A community of patients, family members and friends dedicated to dealing with Fibromyalgia, together.
Fibro Family United Support Group of NJ
My main goal is to create a support group in Somerset/Middlesex County, New Jersey. My mission is to support others that suffer from Fibro as much as I do. To offer understanding, guidance and support. To build a foundation for more people to become aware of Fibro! We are a Fibro Family and we are United! Together we will BEAT this dreadful illness!
Fibro Mates Support Group
A community of patients, family members and friends dedicated to dealing with Fibromyalgia in the Family, together.
Fibro Pals
Website includes Fibromyalgia support group finder for the UK, information on FMS, interesting and funny videos, details of groups, when and where they meet and a fibro forum, chat room and gallery for members of the groups who join.
Fibromyalgia and CFS
With over 2500 members, this group has an amazing amount of resources to help the newly diagnosed to understand what is happening to them. This is a non-religious, non-political, worldwide support group.
Fibromyalgia Coalition International
Group meets 1st & 3rd Saturday of each month alternating between speakers and Bonding and Sharing Hope meetings.
Fibromyalgia & Lumps Support Group
A community of patients, family members and friends dedicated to dealing with Fibromyalgia & Lumps, together.
Fibromyalgia Assoc. UK
We have over 100 local support groups and help lines throughout the UK, Ireland and the Channel Isles who are there to help you on a local basis.
 Fibro Splashes – For Those Who Live with Fibromyalgia
Fibro Splash is an email discussion group, in a Christian environment, where encouragement, tips, joys and sorrows are shared from one’s experience with fibromyalgia. We welcome you and are eager to get to know you.
Fibromyalgia Support Group
A community of patients, family members and friends dedicated to dealing with Fibromyalgia, together.
Fibromyalgia Support & Understanding
Providing a positive and informative support group to serve the community. Providing information on our disease with the latest news. I am available to the members 24/7 offering a shoulder to lean on when the times are bad; a hug to know that someone cares; a ear to listen when we just need to cry out our frustrations. Discounted services offered to our group members from a Yoga instructor, message therapist, and Chiropractor services.
Fibromyalgia Teens Support Group
A community of patients, family members and friends dedicated to dealing with Fibromyalgia Teens, together.
Friends Because We Have Fibro and/or CFS/ME!
Support group for those who have Fibromyalgia and/or Chronic Fatigue Syndrome. Great support and wonderful information!
Friends International
FMS-CFS Friends International is a friendly cyber-community for people with chronic pain, FMS, CFS, ME and/or back pain.
Friends With Fibromyalgia & CFS
Exchange of information such as remedies and techniques for coping with Fibromyalgia & CFS, or simply to talk about how your day is going or simply to ask your fellow fibromites for advice. My goal is to make this group a fun place to come where you will not be judged.
We launched our online support newsgroup, GUAIGROUP in September, 2002. Since then, more than 2000 people have signed on and received help and support from our community. The group was established to help those wishing to reverse their fibromyalgia using R. Paul St. Amand M.D.’s guaifenesin protocol…and friends and family are welcome to join, too.
healKick is a social network for young adult patients 40-&-under with neuro-immune illnesses such as: Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, Chronic Lyme Disease, Fibromyalgia, Rheumatoid Arthritis, Lupus, Sarcoidosis, Reflex Sympathetic Dystrophy, Multiple Sclerosis, Multiple Chemical Sensitivity, Mold-Related Illness.
ME/CFS Forums
Part of the forum is concerned with research and news, and is open to reading by the public. The other part of the forum is for support and sharing and is available only to members. We have members from all over the world.
 Men with Fibro Online Support Group
A community of patients, family members and friends dedicated to dealing with Men with Fibro, together.
National Fibromyalgia Assoc.
The National Fibromyalgia Association organization’s mission is to develop and execute programs dedicated to improving the quality of life for people affected by fibromyalgia.
Open Arms
Fibromyalgia and C.F.S. Support site. We are a small group of People who all deal with the same illness, pain, fatigue, and misunderstanding.
Young Adult Patients with ME CFS, Chronic Lyme, Fibromyalgia etc The owner is a 27-yr young man with ME/CFS and chronic lyme for the last 5 years. He recently created an online group that aims to provide a medical and social support for 40-and-under young adult patients with neuro immune disease (ME, fibromyalgia, chronic lyme, atypical MS, MCS, and mold illness.)
ProHealth Inc. Fibromyalgia & Chronic Fatigue Syndrome news, information and support.
Reaching Out Supporting those suffering from Fibromyalgia & CFS/ME
STEPS Care for Carers This is a private chat group for Carers only. The Carers share ideas and post questions to get advice from other Carers. As administrator, Steps Care for Carers also posts any information that we feel will be useful to Carers from funding opportunities to respite and everything in between. Acceptance to the group is through request and verification of your caring role.
SOFA: South Okanagan FM-ME Association Non Profit Organization with Programs and Services for those with the FM-ME/CFS and their family, community, medical community.
Foggy’s “invisible illness” Support Group Dedicated to providing support, raising awareness and promoting positivity!!
The ME Assoc. Our ME Connect volunteers provide information and practical advice & support.
TMJ Worldwide An open forum where you can discuss any issues surrounding the Tempero Mandibular Joint (TMJ) and the related health issues. This page is a collection of personal journeys and thoughts and in no way has an ‘alignment’ towards any one particular type of treatment. TMJ Worldwide’s ‘voice’ is one of the ‘sufferer’ and their personal account and experiences, it does not reflect on TMJ Worldwide specifically.

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s