What is it like to have ME? (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome CFS)
So destructive and so true. You are actually left with nothing, being more a zombie than a human being. More dead than alive. So hard to be understand by the healthy people. They really think that CFS is a joke. They think that the person does not want to get well but the reality is that is almost impossible to fight with such a destructive disease. You dont want to go to bed anymore and to not wake up anymore next day. It is like life has no longer meaning as it is no life in it.
I think it has something in common with Love from Annie Lennox’s song Love is a stranger except the fact that there is nothing noble in CFS:
It’s savage and it’s cruel and it shines like destruction
Comes in like the flood and it seems like religion
It’s noble and it’s brutal, it distorts and deranges
And it drenches you up and you’re left like a zombie
I would like to cite again this: “Nobody can really put themselves into another’s shoes unless they’ve been there – not with the best will in the world” –http://forums.phoenixrising.me/index.php?members/peggy-sue.5492